Never thought I would see the day that I would be writing on Google about my dis-motility disorders. Well here goes, I have sooo many dis-orders, that the Cleveland Clinic and Mayo Clinic have both told me there is nothing they can do for me, at the age of 50, am now 55.I now am on TPN, probably for the rest of my life, because when I eat, it stays in my stomach and intestines and ROT'S and I then
I had just finished the electronics technician school for submarines in Groton,CT when I was diagnosed with diabetes. Not wanting to lose another submariner, especially a freshly trained one the doctor convinced me to stay in the Navy. I was in prime shape, running 10 miles a day and the doc told me if I keep working out, I had nothing to worry about and no further treatment was needed. Unfortunat
I was always able to eat anything I wanted without gaining any weight. I was and still am very athletic and in shape. I am only 16 years old and got diagnosed with gastroparesis April of 2014. My symptoms began in January, and I was tested for many different types of bacterial infections but every result was normal. My everyday symptoms were dizziness, nausea, headache, abdominal pain, weight loss
I have always struggled with my weight, my doctor would constantly ask my parents if I showed any signs of anorexia, people would compliment me on how flat my stomach was or how skinny I was, but little did they know what I was dealing with on the inside. I was always able to eat anything I wanted without gaining any weight.I was hospitalized 8 times in the year leading up to my first year of high
In early February 2014, I spent a week in the hospital and was eventually diagnosed with gastroparesis. My life changed in ways I could not have imagined – overnight. One day, I was able to eat at buffets, if I so desired, and the next day, I was unable to tolerate all foods and liquids. I was hospitalized with severe pain and vomiting, put through a battery of tests (including one partic
Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get
My story begins and ends with a plea to lawmakers. Our Declaration of Independence lists our "inalienable rights" of "life, liberty and the pursuit of happiness". I ask you to give me and my fellow sufferers with gastroparesis those rights. There are numerous medications and treatments for gastroparesis in other countries that have not been allowed in the USA. These are approved by the World He
I was officially diagnosed with Gastroparesis in March of 2014. However, my doctors feel that I have been suffering with it for much longer. In 2007 following a surgical biopsy I was diagnosed with Reflux. I had started experiencing classic reflux symptoms with heart burn and a lump sensation in my throat. The piece that didn't fit was constant and random regurgitation of undigested food. I starte
I thought my life couldn't possibly get any worse. Yes, I have an amazing husband and three awesome kids ranging from age 13-22.
Sometime around February of 2014 I was called to come into my doctors office immediately. He walked in the room and had two boxes in his one hand. I shook my head, "No No No" as he said "Yes Yes Yes". My blood sugar was way of the grid. I was close to kidney failu
DHA advocate Lindsay has made great strides to raise awareness and funds for gastroparesis. The first annual Go With Your Gut 5K was held in Hilliard, Ohio, on August 23rd of 2014. Lindsay crushed her $3,000 fundraising goal, bringing in more than $9,000 to benefit research into idiopathic gastroparesis through the DHA and IFFGD. Her dedication to improving the lives of all people with gastropares
My Gastroparesis Story My name is Trisha and I am sharing my personal story to give you an inside look at what it's like living with this awful and misunderstood disease. I have had GI-related issues and numerous sporadic episodes of being unable to eat due to pain and nausea/vomiting for many years, but none of the episodes has been anywhere close to being as severe or long-lasting as the issu
Hi my name is Rebecca and I was diagnosed with Mild Gastroparesis in 2006. I have always suffered with constipation from childhood and was very familiar with laxatives growing up. I also had a lot of tummy aches. However when I became a young adult; I found a way to keep my constipation under control for first time in my life; and, that was simply by drinking a 6 oz. glass of Prune Juice followed
I have had gastroparesis since 2008. I am dealing with the symptoms quite well currently. However, I developed Tardive Dyskinesia in Dec. 2013 after taking Reglan for almost 5 years. After many searches online regarding GP and TD, I discovered there have been lawsuits brought against the manufacturers of Reglan by TD sufferers. I am interested in pursuign something like that because I know my care
Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get ar
Hi My name is April!!! I am so excited to share my story! Omg first and foremost to everyone living with this God awful disease Gastroparesis I love you and I am praying for you constantly! Well I was diagnosed with diabetes when I was pregnant with my youngest son! Horrible at keeping my levels under control thinking ir was a game! Well in 2010 I had my first set of symptoms and didn't know! I wa
Hi everyone was I pleased to find this page as I'm at my wits end iv even starting goin to church ( which is something iv never done before but I do believe in my angels) iv suffered badly with EDS and everything that goes with it and as a child with unkind cruel parents I had spent over time some years ( if u put them all together) in hospital as I had bad constipation where I didn't go for mo
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