STorres Quote

"Let Your Voice Be Heard!" Gastroparesis Advocate Shares the Importance of Finding Your Community

August 13, 2018 BY TEGAN GAETANO 

For many, the journey from symptom onset to long-term symptom management is a long and winding one, taking twists and turns and flipping "normal" completely upside down. Here, IFFGD talks with gastroparesis advocate and member of the IFFGD Patient Advisory Committee, Stephanie Torres, about her journey with gastroparesis and the importance of finding your voice and your community.   [...]


CRojas Quote

CELAH Celebrates 10 Years of Service to the Latino Community

August 2, 2018 BY TEGAN GAETANO 

This year marks the 10th anniversary of the University of North Carolina (UNC) Center for Latino Health (CELAH). Starting out with the goal of improving the care Latino patients receive at UNC, CELAH has expanded over the last 10 years to bolster advocacy in the Latino community, conduct and support research into health issues affecting the Latino population, and train health care providers to provide care for this population. IFFGD Patient Advisory Committee member and CELAH Program Manager, Claudia Chaparro-Rojas, reflects on a decade of serving the health needs of the Latino community and how the personal experience of living with a chronic digestive condition has influenced her relationship to the community she supports.   [...]


MVanHouten quote

Gastroparesis Advocates Raise Their Voices for Awareness from Coast to Coast 

July 13, 2018 BY TEGAN GAETANO 

Gastroparesis affects up to five million people in the U.S. and is associated with debilitating and sometimes life-threatening symptoms. Yet, it remains a little-known condition for most. To raise awareness, gastroparesis advocate and IFFGD Patient Adivsory Committee member, Melissa, shares a community-driven campaign to amplify the voice of those affected during Gastroparesis Awareness Month in August by establishing awareness proclamations in cities and states across the nation.   [...]


gut people

Connecting Patients with a Rare Digestive Disorder to Research and Cures: An Article for Health Europa Quarterly 

June 14, 2018 BY TEGAN GAETANO 

Life with a rare digestive disorder often means suffering with disabling symptoms for years before receiving the correct diagnosis and appropriate care. Patient advocacy organizations like IFFGD play a leading role in reducing this burden by connecting those affected by these conditions with the general practitioners and specialists who manage their care and the investigators whose research provides hope for better diagnostic pathways, treatments, and even cures.

In this article for Health Europa Quarterly, we talk about barriers those affected by rare digestive conditions face and how patient organizations work to break down these barriers.  [...]


 Untitled adele

IBS and the Workplace: 3 Things You Can Do for a More Comfortable Working Environment


It may come as a surprise to many, since it's often regarded as a trivial condition, but irritable bowel syndrome (IBS) is one of the most prevalent and burdensome chronic conditions reported by patients. It's cited as the second leading cause of work and school absenteeism (second only to the common cold) and was found to cause those affected to restrict their personal and professional activities an average of 20 percent of the calendar year (73 days). [...]










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