TwitterChat AHardy

September Diet & Digestive Health Twitter Chat Recap

Microbiome & Gut Health

Septmeber 14, 2020 BY HAYLEY MCCORKLE

Gut microbiota (or the microbiome if we include the functional capacities as well) play important roles in helping maintain our health. Among other things, a healthy gut microbiota helps with digestion, maintaining our immune system, and protecting us from dangerous microbes. An imbalance of the microbiome may have long lasting effects and could influence brain-gut interactions. An imbalance in the gut microbiome can also make a person more vulnerable to a functional gastrointestinal (GI) disorder.

Various dietary modification and other lifestyle changes may help to reduce symptoms that may occur. It is natural to have some concerns about finding the right treatment plan for you. For some seeking support from a registered dietitian could help. During the next hour, we’ll discuss the importance of diet and your gut health. We’re joined today by registered dietitian @AndreaHardyRD (Andrea Hardy, RD) to share her unique insights on Microbiome & Gut Health for those living with #GI conditions.

Click for a full summary of the chat

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December 2019 Diet & Digestive Health Twitter Chat Recap

Eating to Reduce Constipation 

December 19, 2019 BY HAYLEY MCCORKLE

Most of us experience constipation from time to time. This can result from illness, inactivity, travel, medications, and other circumstances. For most people it is acute, meaning it goes away fairly quickly. In recognition of December being Constipation Awareness Month, dietitian Patsy Catsos joined us on Thursday, December 19th at 12:00 PM EST for a discussion on dietary modifications to help reduce constipation. Summary of #DDHChat tweets.

Get a recap of the chat.  [...]


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October 2019 Diet & Digestive Health Twitter Chat Recap

Nutritional Support for People Living with an Ostomy 

October 8, 2019 BY HAYLEY MCCORKLE

Each year thousands of people of all ages undergo ostomy surgery. One reason someone might have an ostomy surgery could be due to complications of other digestie diseases such as inflammatory bowel disease (IBD), Crohn's or Ulcerative Colitis. However, the reason that someone might have ostomy surgery varies from perosn to person. In recognition of Ostomy Awareness Day being on October 5th, dietitian Therezia Alchoufete, MS, RD, LDN of University of Pittsburgh Medical Center joined us and United Ostomy Association of America (UOAA) on Wednesday, October 2nd to discuss Nutritional Support for People Living with an Ostomy.

Get a recap of the chat.  [...]


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August 2019 Diet & Digestive Health Twitter Chat Recap

Eating with Gastroparesis 

August 27, 2019 BY HAYLEY MCCORKLE

Gastroparesis is a disorder characterized by symptoms and in which the stomach takes too long to empty its contents. It is estimated that about 5 million people in the United States suffer from gastroparesis. There are a number of things that may contribute to or cause gastroparesis but for majoritiy of people with this condition the cause is often unknown and is termed "idiopathic." In recognition of Gastroparesis Awareness Month, dietitian Emily Rubin, RD, LDN of Thomas Jefferson Univesity Hospital joined us and G-Pact on Tuesday, August 20th to discuss "Eating with Gastroparesis"

Get a recap of the chat.  [...]


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June 2019 Diet & Digestive Health Twitter Chat Recap

Eating with Scleroderma


Scleroderma refers to a group of rare diseases that involve the hardening of the skin and connective tissue. About one-third of people with scleroderma have a type called systemic sclerosis (SSc). For Approximately 90-95% of people with SSc, the gastrointestinal tract is affected. In recognition of Scleroderma Awareness Month, IFFGD and Scleroderma Foundation co-sponsored a Twitter chat featuring Neha Shah, MPH, RD, CNSC, CHES from Standford Health as lead host and Dr. Lesley Ann Saketkoo of Tulane University.

Get a recap of the chat.  [...]


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April 2019 Diet & Digestive Health Twitter Chat Recap

Eating for IBS

April 25, 2019 BY TEGAN GAETANO

Irritable bowel syndrome, or IBS, is one of the most prevalent digestive conditions, affecting an estimated 10-15% of the population worldwide. First designated by IFFGD in 1997, IBS Awareness Month is now nationally recognized to raise awareness of this commong, but often misunderstood, condition. In recognition of this awareness event, we were joined by GI dietitian and author, Kate Scarlata, RDN, and IBS advocate and blogger, Amber, for a Twitter chat on Eating for IBS.

Get a recap of the chat.  [...]


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March 2019 Diet & Digestive Health Twitter Chat Recap

Diet and Colorectal Cancer

March 26, 2019 BY TEGAN GAETANO

Colorectal cancer is the third most commonly diagnosed cancer, affecting an estimated one in 23 men and women. To raise awareness and encourage prevention, March was designated Colorectal Cancer Awareness Month in 2000. Since then, it has grown to a rallying point for patients, survivors, caregivers, and advocates. 

In recognition of Colorectal Cancer Awareness Month, IFFGD and Colorectal Cancer Alliance co-sponsored a Twitter chat featuring Whitney Christie, MS, RD, CSO, CNSC, registered dietitian at Mary Washington Healthcare's Regional Cancer Center in Fredericksburg, Virginia. 

Get a recap of the chat. [...]



Bringing Patients and Providers Together One Tweet at a Time: An Article for BioScience Today

March 14, 2019 BY TEGAN GAETANO

As an open forum for human interaction, social media have become the great equalizer of health information — providing a means for patients and health care providers to connect outside of the hospital or local clinic setting and learn from one another. 

In this article for BioScience Today, we talk about how the engagement-driven landscape of social media provides patients and health care providers with new opportunities to connect and learn from each other, bridging traditional divides in medicine and ultimately changing the understanding and delivery of health and health care.  


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G-POEM for Gastroparesis Twitter Chat Recap

March 11, 2019 BY TEGAN GAETANO

Gastric peroral endoscopic myotomy (G-POEM) is emerging as a treatment option for certain individuals with treatment-resistant gastroparesis. To help answer some questions about this new procedure we teamed up with G-PACT and Stanford Medicine gastroenterologist Linda Nguyen for a Twitter chat on Friday, March 8th.

Get a recap of the chat.  [...]


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February 2019 Diet & Digestive Health Twitter Chat Recap

Nutrition, Hydration, and Short Bowel Syndrome (SBS)

February 26, 2019 BY TEGAN GAETANO

Many of the nearly 7,000 rare diseases identified by the National Institutes of Health (NIH) affect the functioning of the digestive tract. One of these conditions is short bowel syndrome (SBS). In recognition of Rare Disease Day and the millions of people affected by a rare digestive disease, Stanford Health Care GI dietitian, Neha Shah, MPH, RD, CNSC, joined us for a chat on nutrition and hydration issues in SBS.

Get a recap of the chat.  [...]


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January 2019 Diet & Digestive Health Twitter Chat Recap

Diet and a Healthy New Year

January 25, 2019 BY TEGAN GAETANO

For many, a New year means a fresh start. We make resolutions for how we want to live during the next 12 months and promise to keep them. Many of these resolutions relate to our self-care. for someone with a chronic digestive disorder, self-care is especially important. Launching IFFGD's 2019 Diet & Digestive Health Twitter chat series, GI dietitian Lauren Cornell, RD, joined us and others on Twitter to share self-care tips and help us start the year out right.

Get a recap of the chat.  [...]


Jeanetta Frye Twitter Chat for Constipation Awareness Month

Constipation Awareness Month Twitter Chat Recap

December 20, 2018 BY TEGAN GAETANO

Most people experience bouts of constipation from time to time. But, for millions of people, constipation isn't something that just goes away. But, what exactly is constipation? Is it a missed bowel movement? Two? And, how is it treated? To help answer these questions and more, University of Virginia (UVA) Health System gastroenterologist Jeanetta Frye, MD, joined us and others from the digestive health community for a Twitter chat in recognition of Constipation Awareness Month.

Get a recap of the chat.  [...]


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Gastoparesis & Diet Twitter Chat Recap

November 28, 2018 BY TEGAN GAETANO

The treatment of gastroparesis varies from person to person but almost always includes certain dietary and lifestyle changes. But, which ones? And, where to start? To help answer these questions, Michigan Medicine GI dietitian Emily Haller, MS, RDN, joined us and others in the gastroparesis community for a Twitter chat.

Get a recap of the chat and other resources.  [...]



The HealthWell Foundation Launches New Fund for CSID

November 28, 2018 BY TEGAN GAETANO

For those living with congenital sucrase-isomaltase deficiency (CSID), access to needed medical therapies often comes at a high cost. To help lift some of the financial burden posed to affected individuals and their families, the HealthWell Foundation has launched a new fund that will provide up to $10,000 in copayment or premium assistance to eligible patients living with CSID.

Learn more about CSID and the fund.  [...]


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Q&A with Dr. Ans Pauwels, 2018 IFFGD Research Recognition Award Recipient

November 6, 2018 BY TEGAN GAETANO

Many people experience more than one gastrointestinal disorder, which can make it difficult to tease apart symptoms and figure out the best overall treatment approach. Recipient of the 2018 IFFGD Research Recognition Award in the category of Clinical Investigator, Ans Pauwels, PhD, is looking at the overlap between gastroesophageal reflux disease (GERD) and other digestive conditions, including functional dyspepsia and esopahgeal disorders such as rumination syndrome, supra-gastric belching, and extra-esophageal symptoms of reflux like chronic cough and globus.

Here, Dr. Pauwels shares a little more about her research.  [...]


KatjaKovacic Twitter 

Q&A with Dr. Katja Kovacic, 2018 IFFGD Research Recognition Award Recipient

October 10, 2018 BY TEGAN GAETANO

Dr. Kovacic is an Assistant Professor of Pediatrics at the Medical College of Wisconsin and serves as the Director of Pediatric Gastrointestinal Motility and Cyclic Vomiting Syndrome programs within the Pediatric Neurogastroenterology, Motility, and Autonomic Disorders Program at Children's Hospital of Wisconsin. She is very active in clinical research with a focus on pediatric functional nausea and vomiting disorders.

Dr. Kovacic was a recipient of a 2018 IFFGD Research Recognition Award in the category of Pediatric Investigator. Here, Dr. Kovacic shares more about her research and what she sees as the future of the treatment of motility disorders in children.  [...]



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Engaging the Patient as Partner: An Article for BioScience Today

September 14, 2018 BY CECIEL ROOKER

There is growing recognition in the research community of the role of the patient as partner — not only in the outcomes of medical research, but in its practice, as well. As a meeting place for all stakeholders — investigators, drug developers and manufacturers, governmental agencies, and patients and their families — patient advocacy organizations like IFFGD are uniquely positioned to faciliate patient involvement in research. 

In this article for BioScience Today, we talk about how patient advocacy organizations like IFFGD partner with patients to shape clinical development, shifting the research and drug development process from one directed by sponsors or investigators to one informed by the real-world needs of patients.  [...]



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Living with Gastroparesis: Everything Changes

September 6, 2018 BY TEGAN GAETANO 

For those living daily with the chronic and often unpredictable symptoms of a gastrointestinal illness like gastroparesis, change can be a scary thing. But, for Certified Health Coach and IFFGD Patient Advisory Committee member, Crystal Saltrelli, change was not just something to be endured, it was to be welcomed. Here, Crystal describes her gastroparesis journey and the change that brought a new perspective and a renewed life.   [...]


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"Teaming Up" for Gastroparesis Patients

August 31, 2018 BY TEGAN GAETANO 

Managing the day-to-day with a chronic GI motility disorder like gastroparesis takes more than just the treatments you're prescribed — it takes a community of support. That's what G-PACT is. Run by volunteers who have been touched in some way by a GI motility disorder, G-PACT offers assistance and support aimed at helping those affected by a motility disorder and their loved ones connect with others and work together to get their everyday needs met. Here, IFFGD talks with G-PACT President, Carissa Haston, about the early days of the organization and the importance of people and organizations "Teaming Up," the theme for Gastroparesis Awareness Month 2018.   [...]


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"We Are in This Together!" Patients Help Patients Receive Care at the University of Louisville GI Motility Clinic

August 27, 2018 BY TEGAN GAETANO 

For many individuals with gastroparesis, obtaining a diagnosis and receiving knowledgeable care often means traveling great distances to the relatively few, dispersed hospitals and clinics across the country that specialize in gastroparesis and other disorders affecting gastrointestinal (GI) motility. To lessen the financial burden many patients and families face, Patrick and Jennifer Dunegan started Gastroparesis Support Services, Inc. (GSSI), a non-profit organization that provides hotel rooms, food, and local transportation for patients receiving treatment at the University of Louisville GI Motility Clinic. Here, IFFGD talks with Patrick about the organization and the critical role it plays in helping patients get the care they need.   [...]


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"Let Your Voice Be Heard!" Gastroparesis Advocate Shares the Importance of Finding Your Community

August 13, 2018 BY TEGAN GAETANO 

For many, the journey from symptom onset to long-term symptom management is a long and winding one, taking twists and turns and flipping "normal" completely upside down. Here, IFFGD talks with gastroparesis advocate and member of the IFFGD Patient Advisory Committee, Stephanie Torres, about her journey with gastroparesis and the importance of finding your voice and your community.   [...]


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CELAH Celebrates 10 Years of Service to the Latino Community

August 2, 2018 BY TEGAN GAETANO 

This year marks the 10th anniversary of the University of North Carolina (UNC) Center for Latino Health (CELAH). Starting out with the goal of improving the care Latino patients receive at UNC, CELAH has expanded over the last 10 years to bolster advocacy in the Latino community, conduct and support research into health issues affecting the Latino population, and train health care providers to provide care for this population. IFFGD Patient Advisory Committee member and CELAH Program Manager, Claudia Chaparro-Rojas, reflects on a decade of serving the health needs of the Latino community and how the personal experience of living with a chronic digestive condition has influenced her relationship to the community she supports.   [...]


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Gastroparesis Advocates Raise Their Voices for Awareness from Coast to Coast

July 13, 2018 BY TEGAN GAETANO 

Gastroparesis affects up to five million people in the U.S. and is associated with debilitating and sometimes life-threatening symptoms. Yet, it remains a little-known condition for most. To raise awareness, gastroparesis advocate and IFFGD Patient Adivsory Committee member, Melissa, shares a community-driven campaign to amplify the voice of those affected during Gastroparesis Awareness Month in August by establishing awareness proclamations in cities and states across the nation.  [...]


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Connecting Patients with a Rare Digestive Disorder to Research and Cures: An Article for Health Europa Quarterly 

June 14, 2018 BY TEGAN GAETANO 

Life with a rare digestive disorder often means suffering with disabling symptoms for years before receiving the correct diagnosis and appropriate care. Patient advocacy organizations like IFFGD play a leading role in reducing this burden by connecting those affected by these conditions with the general practitioners and specialists who manage their care and the investigators whose research provides hope for better diagnostic pathways, treatments, and even cures.

In this article for Health Europa Quarterly, we talk about barriers those affected by rare digestive conditions face and how patient organizations work to break down these barriers.  [...]


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IBS and the Workplace: 3 Things You Can Do for a More Comfortable Working Environment


It may come as a surprise to many, since it's often regarded as a trivial condition, but irritable bowel syndrome (IBS) is one of the most prevalent and burdensome chronic conditions reported by patients. It's cited as the second leading cause of work and school absenteeism (second only to the common cold) and was found to cause those affected to restrict their personal and professional activities an average of 20 percent of the calendar year (73 days). [...]








Publications Library
Survey Corner
September 2020 #DDHChat Recap
December 2019 #DDHChat Recap
October 2019 #DDHChat Recap
August 2019 #DDHChat Recap
June 2019 #DDHChat Recap
April 2019 #DDHChat Recap
March 2019 #DDHChat Recap
G-POEM for Gastroparesis Twitter Chat Recap
February 2019 #DDHChat Recap
January 2019 #DDHChat Recap
Constipation Awareness Month 2018 Twitter Chat Recap
Gastroparesis & Diet Twitter Chat Recap
The HealthWell Foundation Launches Fund for CSID
Living with Gastroparesis: Everything Changes
"Teaming Up" for Gastroparesis Patients
“We Are In This Together!”: Patients Help Patients Receive Care at the University of Louisville GI Motility Clinic
"Let Your Voice Be Heard!" Gastroparesis Advocate Shares the Importance of Making Your Story Heard
CELAH Celebrates 10 Years of Service to the Latino Community
Gastroparesis Advocates Raise Their Voices for Awareness from Coast to Coast
En Español
Biofeedback, incontinencia, y la perspectiva del paciente
Cambios en el Control de los Esfínteres por el Parto
Como Hablar con tu Medico Acerca de la Incontinencia
Constipación, inercia colónica y estudios con marcadores colónicos
Diarrea Funcional
Diverticulosis y Diverticulitis
Incontinencia Fecal y la Edad
Manejo y Tratamiento Medico de la Incontinencia
¿Respondes con el intestino?
Tratamiento la Dispepsia Funcional: Cuáles son sus opciones?
Viviendo y Sobrellevando la Incontinencia
Digestive Health Matters
Medical Definitions
Other Disorders & Nonprofits
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Dietitian Listing
Books of Interest
Video Corner
Causes and Treatments
Gut Flora, Probiotics, and Antibiotics
Research Advances
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Clinical Corner - FAQs

2020 Advocacy Event


Thank you for sharing your digestive health stories with Members of Congress in Washington, DC, during IFFGD's 2020 Virtual Advocacy Event.

Your voices have made a positive impact across Capitol Hill. You can continue to make a difference by contacting Congress.

Visit the Event Page

View Advocate Training Materials