Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year.

About Rare Diseases

The National Institutes of Health Office of Rare Diseases Research (ORDR) maintains a list of rare (orphan) diseases, which are each generally considered to have a prevalence of fewer than 200,000 affected individuals in the United States. Listed rare diseases affecting the functional GI and motility disorders community include:

 

2020 Advocacy Event


AdvocacyEventWeb

Thank you for sharing your digestive health stories with Members of Congress in Washington, DC, during IFFGD's 2020 Virtual Advocacy Event.

Your voices have made a positive impact across Capitol Hill. You can continue to make a difference by contacting Congress.

Visit the Event Page

View Advocate Training Materials

 

Working with Your Doctor

patient doctor

Successful relationships with healthcare providers are an important part of managing life with a long-term digestive disorder.

Doctor–Patient Communication

How to Help Your Doctor Help You

How to Talk to Your Doctor