Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year.

About Rare Diseases

The National Institutes of Health Office of Rare Diseases Research (ORDR) maintains a list of rare (orphan) diseases, which are each generally considered to have a prevalence of fewer than 200,000 affected individuals in the United States. Listed rare diseases affecting the functional GI and motility disorders community include:

 

2020 Advocacy Event


AdvocacyEventWeb

Join us and share your digestive health stories with Members of Congress in Washington, DC, at IFFGD's 2020 Virtual Advocacy Event.

Your voice can make a positive impact across Capitol Hill. 

Visit the Event Page

 

Working with Your Doctor

patient doctor

Successful relationships with healthcare providers are an important part of managing life with a long-term digestive disorder.

Doctor–Patient Communication

How to Help Your Doctor Help You

How to Talk to Your Doctor