PERSONAL STORIES

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD).

TRISHA'S PERSONAL STORY

February 11, 2016 Gastroparesis
Country : USA Satate : North Carolina 

My Gastroparesis Story My name is Trisha and I am sharing my personal story to give you an inside look at what it's like living with this awful and misunderstood disease. I have had GI-related issues and numerous sporadic episodes of being unable to eat due to pain and nausea/vomiting for many years, but none of the episodes has been anywhere close to being as severe or long-lasting as the issu

LINDSAY'S PERSONAL STORY

February 11, 2016 Gastroparesis
Country : USA Satate : Ohio 

DHA advocate Lindsay has made great strides to raise awareness and funds for gastroparesis. The first annual Go With Your Gut 5K was held in Hilliard, Ohio, on August 23rd of 2014. Lindsay crushed her $3,000 fundraising goal, bringing in more than $9,000 to benefit research into idiopathic gastroparesis through the DHA and IFFGD. Her dedication to improving the lives of all people with gastropares

ANONYMOUS'S PERSONAL STORY

February 11, 2016 Gastroesophageal Reflux Disease

HI, I have been wondering for some time why I had a chronic cough for 16 years! I have been to numerous doctors for it. They have given me Advair thinking it was some king of Asthma. Also allergy medicines for allergy because I also had post nasal drip with it. I too thought the post nasal drip caused my cough and curious enough I used the Advair for years thinking it was helping somewhat. I saw a

SHEILA'S PERSONAL STORY

February 11, 2016 Irritable Bowel Syndrome
Country : USA Satate : New Hampshire City : Winchester 

I've had IBS with diarrhea for years..no constipation. My stomach pain occurs after a bowel movement and can last for hours.Some times the pain is unbearable. I take Dicyclamine for spasms and practically live on anti-diarrheals. Mine was made worse by colorectal surgery that failed. My life is governed by my colon. I have to carry extra clothes in the car and wipes & underwear in my purse. My con

KAYLA'S PERSONAL STORY

February 11, 2016 Gastroesophageal Reflux Disease
Country : USA Satate : Arizona City : Flagstaff 

Before I tell my whole backstory, I want you to know, I have found a way to manage my GERD and it can definitely work for other people, too. Two years ago, I found this treatment, and my GERD symptoms went away completely (I could drink coffee, alcohol, eat spicy food again). I'm back to having bad acid reflux symptoms-- but that's only because I was supposed to take the stuff on an "as needed" ba

ANONYMOUS'S PERSONAL STORY

February 11, 2016 Irritable Bowel Syndrome
Country : USA Satate : Texas City : Dallas 

I have had IBS symptoms since a child, or young teenager. I first noticed symptoms (immediate diarrhea) on the first day of a new school, or moving from elementary to middle and from middle to highschool, taking my driving test etc. These were high stress situations for me. During my high school years, anytime I would sneak out or lie to my parents diarrhea would come on immediately. I thought it

BETTY'S PERSONAL STORY

February 11, 2016 Gastroesophageal Reflux Disease
Country : USA Satate : Massachusetts City : Fitchburg 

Hello; I am a 69 year old woman who when I was just 18 years old I had a Duodenal Ulcer. The doctors did not know then that a Duodenal Ulcer could be caused by bacteria. My ulcer was. It was caused by H-Pylori. Never knew until 15 years ago. They found it anti-bodies in my blood and for some reason they put me on a two week horrible treatment. Months later they tested my blood once again and saw a

MEG'S PERSONAL STORY

February 11, 2016 Fecal Incontinence

In 2010 I gave birth to my first son and suffered a 4th degree tear- as a result of a vacuum delivery and episiotomy. Soon after I started having issues with continence but didn't really connect the dots. After a year or so of realizing that something wasn't right, I had a GI doc do a rectal exam and discovered that most of my sphincter muscle was missing. I was referred to a colo-rectal surgeon a

BRENDA'S PERSONAL STORY

February 11, 2016 Gastroparesis
Country : USA Satate : New York City : Port Jefferson Station 

I thought my life couldn't possibly get any worse. Yes, I have an amazing husband and three awesome kids ranging from age 13-22.
Sometime around February of 2014 I was called to come into my doctors office immediately. He walked in the room and had two boxes in his one hand. I shook my head, "No No No" as he said "Yes Yes Yes". My blood sugar was way of the grid. I was close to kidney failu

JULENE'S PERSONAL STORY

February 11, 2016 Gastroparesis

I was officially diagnosed with Gastroparesis in March of 2014. However, my doctors feel that I have been suffering with it for much longer. In 2007 following a surgical biopsy I was diagnosed with Reflux. I had started experiencing classic reflux symptoms with heart burn and a lump sensation in my throat. The piece that didn't fit was constant and random regurgitation of undigested food. I starte

REBECCA'S PERSONAL STORY

February 11, 2016 Gastroparesis
Country : USA Satate : California 

My story begins and ends with a plea to lawmakers. Our Declaration of Independence lists our "inalienable rights" of "life, liberty and the pursuit of happiness". I ask you to give me and my fellow sufferers with gastroparesis those rights. There are numerous medications and treatments for gastroparesis in other countries that have not been allowed in the USA. These are approved by the World He

BRITTANY'S PERSONAL STORY

February 11, 2016 Irritable Bowel Syndrome
Country : USA Satate : Ohio 

I have been suffering from what the doctors diagnosed as IBS for as long as I can remember. I can go for an extended period of time with just simple minor discomforts and live a "normal" life. But when I have what I call a flare, it's like my life stops. I go through periods where it hurts to even think about eating and the nausea feels like it eats me alive. During this time I have been known to

DEB'S PERSONAL STORY

February 11, 2016 Upper GI Disorders, Cyclic Vomiting Syndrome, Gastroparesis, Lower GI Disorders, Other FGIMD

Gastroparesis the beginning. I believe my journey began in 1989 with the first migraine, but I didn't realize it. The first migraine I had was a reaction to Indocin. I thought, at the time! And it may very well have been! What you also need to know? Is that I was an avid exerciser, biker, jogger, and really worked at being healthy. Always had sinus and constipation issues but did my best to get

MELISSA'S PERSONAL STORY

February 11, 2016 Gastroparesis
Country : USA Satate : Indiana City : Indianapolis 

In early February 2014, I spent a week in the hospital and was eventually diagnosed with gastroparesis. My life changed in ways I could not have imagined – overnight. One day, I was able to eat at buffets, if I so desired, and the next day, I was unable to tolerate all foods and liquids. I was hospitalized with severe pain and vomiting, put through a battery of tests (including one partic

STEPHANIE'S PERSONAL STORY

February 11, 2016 Gastroparesis

I have always struggled with my weight, my doctor would constantly ask my parents if I showed any signs of anorexia, people would compliment me on how flat my stomach was or how skinny I was, but little did they know what I was dealing with on the inside. I was always able to eat anything I wanted without gaining any weight.I was hospitalized 8 times in the year leading up to my first year of high

ANONYMOUS'S PERSONAL STORY

February 11, 2016 Gastroparesis

Okay truly I don't know what I have aside from chronic constipation but there is a question mark in my medical notes for Hirschsprung's which is what i believe i may have.
I am writing because i am a bit down about my condition at the moment.
My childhood was affected by it... i grew up believing there was something wrong with me, not like i had a medical condition, but that i was ju

ANONYMOUS'S PERSONAL STORY

February 11, 2016 Fecal Incontinence
Country : USA Satate : Iowa City : Des Moines 

Several years ago I began having episodes of fecal incontinence at night while asleep. Sometimes every few months or multiple times a week. I chalked it up to the frequent diarrhea I had been having since my gastric bypass in 2002. Then I began having minor spotting accidents during the day. I began taking extra clothes to work just in case and lived in fear of a "big one at work" I couldn't hide.

ANONYMOUS'S PERSONAL STORY

February 11, 2016 Irritable Bowel Syndrome
Country : USA Satate : Missouri City : Hattiesburg 

I believe I have IBS. I have weird sounding gas followed by a bowel movement. I do this whether I eat or not. It's worse if I eat. I will go about 10 times without food. I'll have to go about 15 times if I eat. I generally go about 20 to 25 times a day. I can't even sit down without having to go. I know I have bad stomach problems. No one should have to move their bowels this much. It seems like I

ANONYMOUS'S PERSONAL STORY

February 11, 2016 Gastroparesis
Country : USA Satate : Pennsylvania City : Easton 

I was always able to eat anything I wanted without gaining any weight. I was and still am very athletic and in shape. I am only 16 years old and got diagnosed with gastroparesis April of 2014. My symptoms began in January, and I was tested for many different types of bacterial infections but every result was normal. My everyday symptoms were dizziness, nausea, headache, abdominal pain, weight loss

ANONYMOUS'S PERSONAL STORY

February 11, 2016 Irritable Bowel Syndrome
Country : Canada 

I'm a 29 almost 30 yr old female. I've been suffering from IBS-C since my mid teens, and it has become progressively worse since then. My symptoms aren't consistant. I go through phases where my pain and other symptoms it's unbearable, to times where it's tolerable.
The worst symptom of all is the terrible abdominal bloating/cramping. (I look like 6mos+ pregnant) I can't wear any clothing t