PERSONAL STORIES

The following stories have been submitted by people who are going through some of the same struggles as you or a loved one. It can be therapeutic to share your story, and your words might provide comfort to others who are affected by a Functional Gastrointestinal and Motility Disorder (FGIMD).

PAMELA'S PERSONAL STORY

February 15, 2016 Gastroparesis
Country : USA 

In the past 9 months I’ve been called anorexic, a drug addict (due to track marks left by 15+ blown ivs), and a seeker. I've been told it was all in my head, asked how bad a stomach ache could really be, diagnosed with IBS, told it was a chronic condition, and even that it was psychosomatic. It w

MALINDA'S PERSONAL STORY

February 15, 2016 Gastroparesis
Country : USA Satate : Pennsylvania City : Wynnewood 

I started running when I was 22. Over the last 18 years, I have run dozens of races and completed 8 marathons while living with chronic illness. I have gastroparesis (delayed stomach emptying) which causes severe stomach pain, nausea and vomiting

HOLLIE'S PERSONAL STORY

February 15, 2016 Gastroparesis
Country : USA Satate : Ohio City : Marysville 

3 years ago, I embarked on a journey unlike anything I could have ever imagined. I have gone from a strong, independent nurse, wife, and mother to a shell of a person barely able to get up and go each day…to the "new me" – A good person, dealt a bad hand, and doing her best to live each da

ANONYMOUS'S PERSONAL STORY

February 15, 2016 Gastroesophageal Reflux Disease
Country : USA 

I grew up with two parents who had constant heartburn. Dad always had antacids in his pocket and mom kept them on her nightstand. I just thought it was a thing that all adults suffered from. So when I started to suffer from heartburn in college, I didn’t think of it as something I should seek tre

STEPHANIE'S PERSONAL STORY

February 15, 2016 Gastroparesis
Country : USA Satate : Washington City : Bellingham 

Hi, I am a 31 year old woman who was diagnosed with gastroparesis in 2008. I've suffered with digestive issues on and off from the age of 19, shortly after undergoing laparoscopic surgery for endometriosis and ovarian cysts. At the age of 28, aft

SOPHIA'S PERSONAL STORY

February 15, 2016 Pediatric FGIMDs
Country : USA Satate : Wisconsin City : Milwaukee 

Sophia Grace Dummer was born on May 20, 2011 at 7:00 AM, at 32 weeks gestation.  She was baby B in a set of triplets.  At 2 days old she was diagnosed with Ileal Atresia and had her first surgery.  We were then told that she acquired strictures and would need another surgery.  H

JOVAAN'S PERSONAL STORY

February 15, 2016 Pseudo-obstruction, Pediatric FGIMDs
Country : USA Satate : California 

I am Michele Wilson from Simi Valley, California and I am a single mom. My seven year old son, Jovaan started having gastroenterologist intestinal problems when he was 4 months old. We were living in Florida when my son was first born and I remember my son would cry often, especially after I nursed him

GABRIEL'S PERSONAL STORY

February 15, 2016 Hirschsprung's Disease, Pediatric FGIMDs
Country : Colombia 

My nephew, Gabriel, who is now 6 years old, was diagnosed with Hirschprung’s disease  when he was born. Only three days after he was born doctors had to perform an emergency descending colostomy because of the magnitude of his obstruction. Everything went wrong from there. We live in Col

MADDIE'S PERSONAL STORY

February 15, 2016 Pseudo-obstruction
Country : USA Satate : Arkansas City : Fayetteville 

My first father’s day was certainly not as I had imagined.  We were in a strange city, in a huge hospital and within the upcoming days my wife, Tammy and I, would be making the most difficult decision so far in our lives.  Our only child, Madelyn Kate made her entrance into our world te

J'S PERSONAL STORY

February 15, 2016 Irritable Bowel Syndrome
Country : Mexico 

I have just been diagnosed with IBS with diarrhea. I have been sick every 2 weeks since May of this year. It all stated with a bout of salmonella...I am currently living in Mexico because my husband has been transferred here for what was supposed to be 2 years and we are now going on year 4. As I said

CC'S PERSONAL STORY

February 15, 2016 Irritable Bowel Syndrome
Country : USA Satate : Florida City : Sarasota 

I am a 34 year old female and really relate to every story I have read.  The doctors I have seen don't know what to do with me.  I saw the "best" GI Dr. in the area and he said go to the Mayo Clinic.  I went 14 days without a bm.  I have had to rely on epsom salts to get my gi tract

BARBARA'S PERSONAL STORY

February 15, 2016 Irritable Bowel Syndrome
Country : USA Satate : Florida City : Sarasota 

48 yrs old & @ work when I had my 1st attack, I couldn't leave the stall. Someone came in & got my mgr. She freaked when I told her I couldn't finish the day. It had already been 2 hours, and I had lost track of time. Pain 10 out of 10, chills, sweat, lasted 8 hrs! No warning. Next attack 1 yr

ANONYMOUS'S PERSONAL STORY

February 15, 2016 Fecal Incontinence
Country : Italy 

Hello to everybody. I bumped into this website in one of the several moments of discomfort of my life. I was born with myelomeningocele, spina bifida, so I've been dealing with fecal incontinence my entire life.


BROOKE'S PERSONAL STORY

February 15, 2016 Other FGIMD
Country : USA 

My Sphincter of Oddi Dysfunction Story


I went undiagnosed with Sphincter of Oddi Dysfunction (SOD) for 14 years…


JORGE CASTTO'S PERSONAL STORY

October 5, 2016 Irritable Bowel Syndrome

Hi everyone, my name is Jorge and I currently live in north Georgia. About a week ago during one of my frustrations, I stumbled upon this website. And I am just astonished at the story's and even though I know that GI problems are very occurrent in a lot of people's lives, reading these story's I can see very vivid images of what al of you are going through. The reason that I ended up here is b

JOAN'S PERSONAL STORY

September 30, 2016 Irritable Bowel Syndrome
City : Philadelphia suburbs PostalCode : 19003 

God bless you for this site.Sharing with ppl who UNDERSTAND helps! @62, I was dx with very invasive breast cancer.Since I had such fierce cancer, I was given LOTS of VERY strong chemo. One is KNOWN to ruin heart function.But the one that brought me here was one made of bark of a literally poisonous tree.THAT one, poisonous in toto, caused the oncologists to give out Imodium like M&Ms in the

SHANNON'S PERSONAL STORY

May 16, 2016 Gastroparesis

How do you tell the story of how your life fell apart? You went to the doctor thinking you just had some weird stomach illness but medicine and the doctor would make it better. In the fall of 2015 I had the worst seasonal allergies I had ever had. It turned into something that felt like a chest cold. I was having trouble breathing, so I went to a walk-in clinic. The doctor diagnoses me with bro

ALEAH'S PERSONAL STORY

May 17, 2016 Irritable Bowel Syndrome

I am 47 years old.  I have had IBS-since I was in about 17 years old.  I almost got suspended from school one year for being late to class too many times.  Up until about a year ago I had IBS-D, and almost overnight it changed to IBS-C.  I am so miserable I could die sometimes.  I am taking Linzess, and it doesn't work very well.  Sometimes I wait until the weekend

ANONYMOUS'S PERSONAL STORY

June 4, 2016 Irritable Bowel Syndrome

I have had abdominal pain on and off for 4 years.  Since January 2016 the pain has been constant, it gets worse anytime I eat or drink anything, I have lost about 30 pouns since January.  Last December I had a Colonoscopy and in February I had an endoscopy and both cam out normal, March of 2015 I had a hysterectomy because they though this pain was caused by endometriosis, found that

ZANA'S PERSONAL STORY

June 15, 2016 Fecal Incontinence
City : Holden Hill PostalCode : 5088 

Thank you to all brave sufferers of faecal incontinence who have shared their story. I am an author - not a very famous one, but a published one - and I am a nurse, as well as a sufferer of FI since giving birth 24 years ago. One day I would like to seek everyone's permission and write stories. I want the world to know what we go  through because why should we feel guilty, dirty and live w