Since our inception in 1991, IFFGD has helped thousands of people through our toll-free call center, providing information, assistance, and support.

We publish a magazine, Digestive Health Matters, that covers different areas of gastrointestinal health in adults and children with up-to-date information on recognizing, diagnosing, treating, and living with the disorders.

The information is reliable and understandable by lay readers, while being authoritative for medical professionals. Distribution has been to members, physicians, regulators, investigators, and the general public in 129 countries throughout the world.

We maintain a unique library of our own publications and fact sheets that contains over two hundred articles with information on a range of topics available to help individuals or the families of those affected by GI disorders.

We have been active in Washington, DC making the needs of all those affected by functional GI and motility disorders known to members of congress and to funders an regulators at the National Institutes of Health (NIH) and Food and Drug Administration (FDA). Learn about those activities, and how you can participate here.

Timeline

1992
  • IFFGD produces and publishes Participate magazine, the first patient publication on functional gastrointestinal (GI) and motility disorders.
  • IFFGD creates the first Call Center for individuals affected by functional GI and motility disorders.
1993
  • IFFGD creates first patient physician-delivered education curriculum for the public on IBS and on loss of bowel control.
1995
  • IFFGD publishes the first physician Education Guide on functional GI disorders incorporating the Rome Criteria – for physician-delivered community education programs.
  • IFFGD organizes and hosts the first professional symposium on functional GI disorders: the International Symposium on Functional Gastrointestinal Disorders.
1997

          IFFGD web sites provide reliable health information and general guidance.

  • IFFGD designates the month of April as IBS Awareness Month, and it is listed on the U.S. National Health Observances calendar. During this time we work to focus extra attention on important health messages about IBS diagnosis, treatment, and quality of life issues.
1998
  • IFFGD designates one week in November as GERD Awareness Week, which is also listed on the U.S. National Health Observances calendar. During this time we work to focus extra attention on important health messages about GERD.
1999
2001
  • IFFGD produces GERD in the Workplace, a "toolkit" that provides corporate wellness managers or human resource managers the information they need to educate their employees about the signs, symptoms, and treatment of gastroesophageal reflux disease (GERD).
2002
  • Nancy J. Norton, President of IFFGD presents verbal testimony before the House Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies recommending increased funding support in fiscal year 2003 to the NIH.
  • IFFGD conducts and publishes IBS in the Real World survey findings; and IFFGD initiates the IBS: A Call to Action, which resulted in thousands of faxes, letters, and e-mails to members of the U.S. Congress and the Food and Drug Administration explaining the impact of IBS on sufferers and requesting clarification regarding standards for assessing the burden of illness for chronic and debilitating conditions and their application to IBS.
2003
2004
  • IFFGD presents testimony to the House Appropriations subcommittee on Labor, Health & Human Services, Education and Related Agencies in support of fiscal year 2005 funding through the NIH for functional gastrointestinal and motility disease research including development of a strategic plan setting research goals on IBS and functional bowel diseases and disorders, development of standardized
    scales to measure incontinence severity and quality of life and to develop strategies for primary prevention of fecal incontinence associated with childbirth, and providing funding for more research on the causes of esophageal cancer.
2005
  • IFFGD submits written testimony to both the U.S. House and Senate Appropriations Subcommittees on Health and Human Services, Education and Related Agencies for fiscal year 2006 funding of functional gastrointestinal and motility disorder research.
2006
  • IFFGD submits written testimony to both the U.S. House and Senate Appropriations Subcommittees on Health and Human Services, Education and Related Agencies for fiscal year 2007 funding of functional gastrointestinal and motility disorder research.
2007
  • IFFGD submits written and verbal testimony to the U.S. House Appropriations Subcommittees on Health and Human Services, Education and Related Agencies for fiscal year 2008 funding of functional gastrointestinal and motility disorder research.
  • IFFGD, in collaboration with the University of North Carolina Center for Functional GI and Motility Disorders, begins a comprehensive online survey of persons with IBS; IBS Patients: Their Illness Experience and Unmet Needs
  • IFFGD helps plan and participates in an NIH State-of-the-Science Conference on prevention of incontinence in adults.
2008
  • IFFGD presents oral testimony to the House Appropriations Subcommittee on Labor, Health & Human Services, Education and Related Agencies regarding fiscal year 2008 funding for functional GI and motility disorder research.
  • IFFGD drafts and proposes the IBS research and Treatment Act, seeking congressional support.
2009
2010
  • IFFGD drafts and proposes The Functional GI and Motility Disorders Research Enhancement Act.
2011
  • The Functional GI and Motility Disorders Research Enhancement Act is introduced in the U.S. House of Representatives (H.R. 2239).
  • IFFGD creates a grassroots arm, the Digestive Health Alliance (DHA).
  • IFFGD is invited to appear and provides testimony to the U.S. Senate Defense Appropriations Subcommittee about the impact of functional GI and motility disorders on veterans and the needs for research funding.
2012
  • IFFGD provides oral testimony regarding Fiscal Year 2013 appropriations for the Department of Defense (DOD) Gulf War Illness Research Program to the U.S Senate Appropriations Committee, Subcommittee On Defense.

  • IFFGD organizes the 2012 Advocacy Day on June 19–20, 2012 in Washington, DC. where advocates from across the country gathered to educate Members of Congress about the needs of the functional gastrointestinal and motility disorders (FGIMDs) community.

2013
  • The Functional GI and Motility Disorders Research Enhancement Act is re-introduced in the U.S. House of Representatives (H.R. 842).

  • IFFGD organizes the 2013 Advocacy Day on June 18–19, 2013 in Washington, DC. Advocates from across the country again gathered to educate Members of Congress about the needs of the functional gastrointestinal and motility disorders (FGIMDs) community.

2014
  • IFFGD awards $120,000 in grants to support research into idiopathic gastroparesis.

  • The IFFGD mobile app, IBS Info, is launched for iOS and Android systems.

  • IFFGD founder, Nancy Norton, is honored with the Digestive Disease National Coalition (DDNC) Lifetime Service Achievement Award.

  • IFFGD organizes the 2014 Advocacy Day June 23-24, 2014 in Washington, DC. Advocates from across the country again gathered to educate Members of Congress about the needs of the functional gastrointestinal and motility disorders (FGIMDs) community. community.

2015
  • The Functional GI and Motility Disorders Research Enhancement Act is re-introduced in the U.S. House of Representatives (H.R. 2311) by Congressman James F. Sensenbrenner (WI).
  • IFFGD provides oral and written testimony at the FDA Patient Perspective, Patient-Focused Drug Development meeting on functional GI disorders, a part of the Prescription Drug user Fee Act (PDUFA).
  • In collaboration with researchers from the Lewis Katz School of Medicine at Temple University, IFFGD develops a research survey of people diagnosed with gastroparesis to gain a better understanding of the various issues confronting patients with gastroparesis and their treatment needs.
  • A statement in the US House of Representatives is introduced by Congresswoman Gwen Moore (WI-4) on behalf of those affected by gastroparesis recognizing National Gastroparesis Awareness Month.
2016
  • IFFGD launches its redesigned family of websites in celebration of 25 years of support for the digestive health community.

  • Preliminary results of the IFFGD online research survey of people diagnosed with gastroparesis are presented at Digestive Disease Week (DDW) 2016. Full results are published in the peer-reviewed journal Digestive Diseases and Sciences
  • A statement in the US Senate is introduced by Senator Tammy Baldwin (WI) on behalf of those affected by gastroparesis recognizing National Gastroparesis Awareness Month.
  • Gastroparesis Awareness Month is listed on the US National Health Observances Calendar for the month of August. 

See other IFFGD's accomplishments:
Professional Education & Awareness

About IFFGD
Leadership
Nancy J. Norton, IFFGD President
Advisory Board
Board of Directors
Editorial Board Members
Our Mission
Awareness Activities & Accomplishments
Public Education & Awareness
Professional Education & Awareness
Year in Review
-2015
-2014
-2012/2013
Advocacy Activities
Legislative Successes
FGIMD Act (Functional Gastrointestinal and Motility Disorders Research Enhancement Act)
Congressional Testimony
FISCAL YEAR 2016
FISCAL YEAR 2013
FISCAL YEAR 2012
FISCAL YEAR 2010
FISCAL YEAR 2009
FISCAL YEAR 2008
FISCAL YEAR 2007
FISCAL YEAR 2006
FISCAL YEAR 2005
FISCAL YEAR 2004
FISCAL YEAR 2003
FDA and Other Testimony
Written Comments to FDA June 29, 2015
Oral Comments to FDA May 11, 2015
Comments to FDA July 16th, 2014
Written Comments to Noridian October 24, 2013
Testimony to FDA October 25, 2012
Testimony to FDA September 12, 2012
Testimony to FDA December 13, 2011
Testimony to FDA December 2, 2010
Testimony to FDA April 23, 2002
Comments to FDA November 9, 2000
Testimony to FDA June 27, 2000
Testimony to FDA June 26, 2000
Capitol Hill Advocacy Day
Research
IFFGD Research Awards
IFFGD Symposium reports
2013 Professional Symposium
10th Symposium Report
10th Symposium Audio Recordings
More from the 10th Symposium on FGIDs
2011 Professional Symposium
9th Symposium Report
2009 Professional Symposium
2007 Professional Symposium
7th Symposium Report
2005 Professional Symposium
6th Symposium Report
2003 Professional Symposium
5th Symposium Report
2002 Conference - Advancing the Treatment of Incontinence
Funding
Corporate Support
Our Research Funding Needs
IFFGD Standards for Collaboration
Industry Council
Code of Ethics
Contact Us
Media Contact
Donation

Our Mission

healthy family

Education and Research

Our mission is to inform, assist and support people affected by gastrointestinal (GI) disorders.

IFFGD works with patients, families, physicians, health care professionals, and others to broaden understanding about gastrointestinal disorders and support or encourage research.

Awareness Activities & Accomplishments

Advocacy Activities

IFFGD Research Awards