Resources for Short Bowel Syndrome
IFFGD, the International Foundation for Functional Gastrointestinal Disorders, is a place you can go to find help and support.
Here is a list of several other outside resources that provide information and support for people with short bowel syndrome:
Digestive Health Alliance (DHA). The grassroots arm of IFFGD where individuals can interact and take action to improve treatments and help find cures for functional GI and motility disorders, like gastroparesis, through coordinated fundraising, advocacy, and awareness efforts.>
- A Patient’s Guide to Managing a Short Bowel, by Carol Rees Parrish, M.S., R.D. An easy to read and comprehensive book aimed at patients and family members that helps understand the workings of the GI tract and how patients can get the most from their own short gut. Includes dietary guidelines, sample meal plans, as well as descriptions of treatments and management issues. Available online free of charge in the U.S. and Canada.
- The Short Bowel Syndrome Foundation. A nonprofit organization whose mission is to educate, support, and empower patients who live with the condition and the healthcare providers who help patients to manage short bowel syndrome.
- The Oley Foundation. A nonprofit organization whose mission is to enrich the lives of patients dependent on home intravenous (parenteral) and tube feeding (enteral) through education, outreach, and networking.
- Transplant Living. A project of the nonprofit United Network for Organ Sharing (UNOS), Transplant Living provides resources to help people before and after organ transplantation.